HEROES

In January of 2023, our hearts were shattered with the words that no parent wants to hear – “I’m sorry, your son has cancer”. From that moment on, our lives completely changed. Owen, then 15 months old, was diagnosed with Stage 4, High Risk, Metastatic Neuroblastoma. The cancer originated from…

On February 4th, 2023 Carmen was diagnosed with stage 4 high-risk neuroblastoma. After dealing with her symptoms for 7 months and multiple doctor’s appointments, her diagnosis was not what was expected. After all, I don’t think anyone ever expects their kids to be diagnosed with cancer. But cancer doesn’t discriminate,…

Emilia was diagnosed with high risk, stage 2 neuroblastoma on October 17th, 2023. She is ALK and MYCN, which is the most difficult type of Neuroblastoma to combat. Since October, Emilia’s been through 6 rounds of aggressive chemotherapy, an 8 hour resection surgery, and 12 rounds of radiation. She is…

Evelyn Grace Jackson was diagnosed with Stage IV MYCN amplified, ALK mutated neuroblastoma in July of 2021 when she was 20 months old. The mutations her cancer carried made it an aggressive form of disease but opened the door for targeted therapy and molecular monitoring – something rare in pediatric…

Garrett will be 3 August 16th; a week after his first birthday he was diagnosed with stage 3 high risk neuroblastoma. Initially we discovered he had a 19cm mass in his abdomen, within six days of diagnosis we started his first rounds of chemo. After 14 days in the hospital…

McKay was diagnosed with Stage 4, High Risk Neuroblastoma–a solid tumor cancer of the sympathetic nervous system–in February 2014 when he was just 3 years and 9 months old. His symptoms leading up to his diagnosis were not “screaming” cancer, but were common symptoms that could be brushed off as…

On March 28 2023 our 18months old daughter Raegan was diagnosed with AML acute myeloid leukemia. We had noticed she wouldn’t walk about a week before and she was COVERED in bruises, we had taken her to our primary care and were referred to a pediatric orthopedic doctor and hematology.…

Just before River turned one, she fell and bumped her cheek on the coffee table, resulting in a goose-egg. Concerned, her parents advocated for her when the swelling persisted. Unfortunately, she developed an infection, leading to sepsis and an eight day hospitalization. After tests and antibiotics, she returned home to…

This is our Row-Row. Rowen was diagnosed with stage 4 High risk neuroblastoma on his 2nd birthday. Rowen has undergone extensive treatment, since November 2022, & is still on his treatment journey. He recently relapsed in March 2024, & is completing his second journey on his new road map of…

Wesley is a very energetic 10 year old boy who loves baseball and soccer. On a regular Saturday soccer game a year ago May, he suddenly couldn’t catch his breath in the middle of his soccer game. That following Monday we took him to his peds doctor where we thought…